Support for Visual Impairment (AMD)
But those words are not true as far as getting on with your life with a vision impairment is concerned. I am talking here about AMD (Age Related Macular Degeneration) .
You may not be able to find a cure, but you can find plenty of help to make your life rich, full and abundant. I will tell you about some of what is available and have put up links to help you find out more below.
Personally, I have found help in abundance since being diagnosed with AMD. I feel astonished at times when I see how much support there is out there. And most of it is Free.
Just as an aside here; note that I am still active even with a vision problem. Life does not come to a halt with AMD. I have met some amazing people who are active even with very poor sight. That is what support is all about.
I am currently attending, The Macular Society group meetings once a month and also a monthly lunch meeting with the new friends I have made in the group.
I have just completed four days, spread over four weeks, at the local Guild in Plymouth called Sensory Solutions. The course is called Improving Lives. I have found a niche in that guild now as a host to help out with the course.
I am going to attend the monthly meeting for graduates of the course at the Plymouth Library once a month, and am also hosting them.
Hosting means that I will be making the drinks, serving food, helping people in and out of the taxis, preparing the rooms and generally supporting people with any concerns that they may have. I have made new friends by doing this too.
There was also an opportunity for my husband to come along to Sensory Solutions to learn more about the condition and meet other people who either live with visually impaired people or who support them in other ways. I have found that he understands more about what I experience because of that.
Sensory Solutions have also shown me how to use my settings on my lap top and also my iPad to make them easier to use.
Not many people are aware that their local eye hospital has a Liason Officer. These people are there to help you find your way through the maize of support and help available. They will also give you a low vision assessment. If the Consultant does not tell you that, just ask at reception.
On Facebook there are several groups, I belong to two. One in the USA and one in the UK. When I feel alarmed at something that I hear or something that is happening to my sight, I can just go into one of these groups and will very soon feel supported and get answers.
So, the moral of this story is; don’t panic, don’t be afraid, don’t be isolated.
I have found these groups to be upbeat, yet understanding, both the physical ones and the Social Media ones. I feel supported and useful. Life does go on even with a Vision Impairment, and just the other day I found myself saying that I actually get a kick out of it!
Here are the links.
The Macular Society. You can google the society to find out more, but this link will put you through to the many groups all over the UK. https://www.macularsociety.org/groups
There is the well known RNIB (Royal National Institute for the Blind. You will be amazed at what is available. http://www.rnib.org.uk/benefits-and-support
For your local area in the UK go to http://www.visionaware.org/
On Facebook, the links I mentioned are; The UK Macular Degeneration Friendship Group.
And in the USA, which is run by two eye consultants.
There are other groups for MD, one which I started myself, but I have let that one run down because I have found the ones above to be so helpful.
The reason why I haven’t gone into support for other visual problems is that I mainly write for those people who have AMD. But I am sure that if you look, you will find support for whatever condition you or your friend or loved one may have.
See also Macular Degeneration and Diet