Macular Degeneration and Diet.

Eye blue side

 

Firstly let me tell you my story.

I was diagnosed with the early signs of Age-related Macular Degeneration four years ago. At a regular eye test, the Optician told me that I had something called Drusen, which appeared as little white fatty spots on the picture of the back of my eye. He advised me that I should take supplements which he recommended and so I did that.

Being of a tenacious nature and having an enquiring mind, I began to do my own research about this condition and also found out what support was available.

The news was not good because AMD is apparently un-reversible and steadily gets worse. It is genetic and often caused by smoking. The advice was also to eat plenty of greens stuff, and the jury was out on supplements.

Two years down the line after having new prescription lenses and finding that they did not help my vision, I went to the University in Plymouth, where I had volunteered to be a guinea pig for students, and they found a layer of Wet behind the macula. I was sent straight away to the Eye Infirmary, where they said that it was not yet bad enough for treatment (injections in the eye) but that they would monitor it and start injections when it deteriorated to a crucial stage.

Meanwhile, I was experiencing a great deal of stress in my life, which I will not go into here.

On the positive side, the wet was not getting any worse. I was also watching what I eat, and kept mostly to a natural diet, not eating much of the refined and processed products that pretend to be food these days.

Then, in October last year, the source of the stress left my life. In December I went to the Eye Infirmary who told me that they would not need to see me for another three months as opposed to the usual four weeks, because there was still no change, and they would be discharging me on my next visit if there wasn’t any further change. (I found out from the University that it meant that the wet MD was not getting worse.)

On my last visit to the University two weeks ago, they did a scan, and found that the wet had disappeared!  Apparently, the effects that stress can have on Wet AMD is not very well researched or recognised. But the tutor said that she would be telling researchers about my case.

To sum up then; my vision is a lot better. The wet has disappeared. The progression is not as much as was first feared. None of this is my imagination because it is there on the scans. I am now using the distance vision glasses again and managing a lot better.

I claim that the reasons are; because I eat a healthy diet; I do not take expensive synthetic supplements anymore; The enormous stress has disappeared from my life; And I practice Spiritual (not religious) development.

Dr Zoe Harcombe, with whom I developed my way of healthy eating has just sent me this link;
https://www.youtube.com/watch?v=AJCLB3D-2cE

It is a talk by a Chris Knobbe.MD. And just about sums up what my own experience with MD is except for the stress factor.

He has been studying the effect on AMD from our appalling modern diet. He gives correlation studies on this.

I could tell you what he says, but the best way for you to find out is to watch the video. It is quite literally an eye-opener.

He does not claim that we can all repair our eyes, but what he looks at is how we can prevent it and reverse it in the early stages with a natural ancient way of eating.

The four main culprits that are very significant in our modern diets, starting from the early sixties are; White flour, Vegetable oils, trans fats, and sugar.

If you think about it, those are the ingredients in our modern day diet of mainly processed foods.  

In the USA the food intake percentages are; Plant foods, 12%: Animal Foods 25% and Processed foods 63%.

He shows the correlation between the increase in these processed foods and MD, from very few cases in the 1920’s to the present day prevalence of it.

He gives a list of diseases that are increasing in the countries that have these monster foods, among these diseases are; diabetes, heart disease, stroke, cancer, Alzheimer’s, Obesity and autoimmune diseases. All are amounting to something called metabolic syndrome. Now, with his lengthy research and correlated findings he wants to see MD added to that list.

Because of my own experience, I believe him. I left off the supplements last September and increased my daily intake of green foods. I eat a good diet, and I am aware of my emotional and mental conditions too.

In case you are wondering about my diet, I will say that before seven years ago, I was consuming a lot of the four foods he mentions. White flour, sugar, vegetable oils and trans fats, loomed large in my way of eating. I was a victim of the slimming diet industry, and yes; diet foods contain these ingredients. I dieted on and off for over forty years until I discovered how to eat for my health.

Which reminds me; a lot of Baby Boomers are the ones who were told to eat low-fat foods. That advice happened in the late 1970’s when we were all foxed into becoming low fat eaters. The food industry jumped on the wagon, and it has become conventional to avoid fat.

For the last seven years, I have mostly kept to a natural diet. I eat very small amounts of sugar or even sweeteners. I base my intake on plenty of plant foods and vegetables, one piece of fruit a day, natural yoghurt, (not low fat) animal products, eggs and some amount of natural fats such as butter, olive oil and coconut oil, nuts and seeds. I eat very little in the way of bread but have quinoa and a small amount of rice or oats.

These foods have become my normal way of eating.

Please have a look at the video, before you make any comments or judgements. I do not claim to know it all, but Chris Knobbe.MD, and Dr Harcombe and a good many other researchers and authors certainly know enough for the authorities and many medical professionals to sit up and start to take notice.  

If you want to read any further about a healthy and natural way of eating, and why, the following list of authors have written extensively about the subject. Just google them!

Dr Zoe Harcombe; Robert Lustig; Gary Taubes; Dr Verner Wheelock; and much more about the damage that sugar and our faulty way of eating in the 21st century.

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MD Conference 2017 Report.

 

MD conference 2017

 

On Saturday September 16th 2017, I attended the Macular Society conference in London with my daughter.

Right from the time we stepped outside the Tube station, I was astonished at how well they were organised. As we stopped to look at our maps of the location of the conference, we spotted two people in yellow teeshirts with Macular Society on them. Every hundred yards all the way to the hotel, on every corner, there were more yellow teeshirted people many with flags to attract our attention.

We were greeted at the Hotel by warm friendly volunteers and shown where everything was. Including coffee and pastries.

The exhibitions were many and helpful and as we entered the main conference room, my daughter remarked that she was impressed by the 600 people who were proactive and not just sitting back and being visually impaired.

At 11 am the conference began with a welcome speech. Followed by three speakers. The first gave a simple illustration of the mechanics of AMD, using a packet of biscuits as an example. When the lowest biscuit in a packet is stale, it crumbles and disintegrates. This is what happens in our eyes, and the cleaning cells wear out and crumble. (Not absolutely accurate, but that is the gist of the talk.)

The next speaker was a consultant from Moorfields who was more scientific. And due to restrictions in time he had to speak very fast. But he gave examples of the many experiences of how AMD can progress, both from the patients point of view and the consultants. He also said that while we question why there are so many cases now, we need to bear in mind that we have an increasingly ageing population. Our bodies are not meant to last that long! Which you can agree with or not.

The third speaker gave a talk on Charles Bonnet syndrome. People with AMD can hallucinate. Some hallucinations can be dangerous, for example one may see a brick wall in front of them that is not there. But there could be the day when there really is a brick wall!  There can be clouds of butterflies or people with odd clothes or shapes. They reckon that it is the brain compensating for the loss in sight. There is research going on about this, but no answers yet. However, at question time a woman in the audience said that, she had had hallucinations for some time, but since she had developed another age related disease they had faded away, and she wondered whether there was a connection and the brain was now concentrating on the more serious disorder.  The Speaker was very interested to hear about this and was going to talk to her more afterwards.

At 1pm, we broke for a delicious lunch of rolls, sandwiches, wraps and fruit. Coffee was in full flow all day long.

After lunch we went to the workshops of our choice. We went to the one on supplements and nutrition. Very interesting. The best thing that you can do with supplements is to study the AREDS reports. I will do a seperate blog about supplement and AREDS in a couple of days.

As far as food was concerned, eat the rainbow, which is what I have said in other blogs before. Include lots of veg, the darker the better, and fruit also darker the better. Red meat, (not processed) is good, especially liver.

It was emphasised that once we have MD all we can do through food and supplements is to slow down the process. But that if we take on a healthy lifestyle early in life AMD along with a lot of other diseases can be delayed if not eradicated. I will add that I believe that even if we do go on to have any disease, if our bodies are healthy in the first place, we stand a better chance of recovery or at least we help our bodies to fight it.

It was also emphasised, how much smoking can damage the eyes.

So for those reading this that don’t have AMD, bear in mind that it is another reason to live healthily.

We then went back to the main conference room and heard another speaker on the latest research. They are now in a position where they can announce success with two people who have received stem cell surgery.  Their eye sight was quite bad but they have now said there is an improvement. There are now another five waiting for surgery. It will be about five years though before they will be putting this treatment out for the public. Even then, at the moment it will only be available for the most suitable criteria.

I could not help but wonder what will happen when NICE get hold of it!!

But, my daughter who stands a big chance genetically of getting AMD was encouraged by the day and learnt a lot about how to lessen the chances of it happening. Especially the amount of time and money that is going into research and finding a cure.

There was an awards ceremony for the best team within Eye hospitals, kindest and most helpful Opthamologist, and the various volunteers within and out of the MD Society.

All in all a wonderful day, and all for less than £25 I must add.

I for one am going to become a paid up member of this marvellous society. You will see their leaflets and booklets with loads of information, in yellow and black enlarged print in the Eye departments of your hospitals. I have come accross their literature in my capacity as a volunteer for my local Guild, Improving Lives. I also belong to one of their loca groups who meet monthly.

There is a helpline for those who are worried and want to talk to someone. And there were also the numerous volunteers who guided us to the hotel, were around with their smart black clothing and scarves or ties with the logo on them, to help and support in many ways in the conference and hotel, many of whom have MD themselves, and prove that life does not end with this condition. We can still contribute to society in a way that will encourage those who are badly affected, and prove that.

So, watch this space for lots more to come as I learn more, and experience myself what can happen in our everyday lives with AMD. Everyone experiences it differently, but it is useful to find out from others how they overcome it.

There are groups on Facebook and here are the links.

First the UK MD group for the UK.

https://www.facebook.com/groups/589067591220411/

Secondly for the USA

https://www.facebook.com/groups/amdcommunity/

I belong to both.

The Macualr Society Website is;

www.macularsociety.org/

 

 

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AMD Constant adjustment.

 

As many of you know, I have the condition known as AMD (Age-Related Macular Degeneration)

I won’t go into the details of the condition; you can google it for that, or look at previous blogs that I have written.

I like to write about my experience, for people to understand it, both in the carer’s capacity and the sufferer.

As soon as people are diagnosed with this condition, life becomes a challenge.

Firstly the acceptance of it. Sad to say, many consultants or ophthalmologists, don’t understand that when they use the words, “There is no cure, and nothing that can be done I’m afraid” (which many people who have the condition have experienced,) it frightens people badly. They panic, they despair, they wonder what is going to happen and I have had people say that they could not stop crying for days afterwards.

Secondly, life takes on new challenges.

For this blog, I will take just these two, as there are much more in our everyday lives.

The first one, scary as the consultant’s words are, they are not as final as they may sound. Yes, there is no cure at present for AMD, but there could be in the future. But there is so much help, and support that in reality, the consultant’s words should be something like “There is no known cure at present, but as long as you don’t have any other conditions, you will not go blind. And there is plenty of help and support out there for people like you. Let me introduce you to a way to start.”

You could then be led down several routes.

(The information in this blog may not be suitable for other countries, but I hope that it will lead you to see that there is support, and you will find out from the US group.)

So now to the second point from above. Life takes on new challenges.

Yes, it does indeed. Firstly there is the challenge of acceptance. I am not saying that there is never any hope of a cure, but at the time of writing there is not. I have had some people sending me links about treatments that they have had, and it may have worked for them, but scientifically there is no cure.

I have also had suggestions to me that it is emotional and maybe there is something that I am not seeing in my life that needs to be sorted. Someone even suggested that all illness is emotional. I am not dismissing that idea, and yes, I can go along with that, but AMD is a mechanical breakdown, and it needs to be managed until there is a better way. Much the same as managing any other breakdown in our body.

If the emotional side of it grabs you, then, by all means, look at it. If it works for some, I would dearly love to hear about it. Not theory or hearsay, but testimonials of your own experience.

But I am talking to people who don’t think that way, and just want support for their condition. To know how to learn to live with it, and make the most of their new lives, with AMD and hear about how others manage.

So, back to the challenges that AMD can present themselves in our everyday lives. Well, there are many;

  • Learning how to manage gadgets, books etc., by adjusting the font sizes.
  • There are plenty of hearing tools, such as audio books, and your local library will help.
  • Having some visual identification such as a white symbol symbol-canecane, so that people will understand if you are taking a long time in the supermarket queue or getting on and off the bus.
  • Finding ways of continuing your hobbies. With suitable lighting and magnifying tools.

Those are just some of the aids that help. You will find out more as you go along.

Then, as the condition progresses, you may have to make more adjustments.

Up to now I have managed to continue my hand sewing and have been making some quite intricate items. But in the last two weeks, I have realised that I need to find an alternative. I can no longer manage it. I am currently struggling to make my last cushions after doing them for a few years. That is an adjustment. A challenging one, but by being tenacious, I realise that I can make crochet items instead because crocheting is a more tactile activity.

red cushions  (2)

That is just one example. Other examples may be, changing your room around so that you have plenty of lighting or shadow where it’s needed. For example, you may find the TV is better in another part of the room or your chair.

I am finding that my life is enhanced by having this condition. I am starting to work in a local group who do courses for people with visual limitations, and from this, I am making many new friends. I also belong to the local Macular Society group, and sometimes I almost ache with laughter at seeing the funny side of everything.

I have great pleasure writing about the condition because not many people who have it can do that for one reason or another. That way I feel that life still has a meaning and purpose.

We can all adjust to anything in our lives. Most times it is fear that prevents us from seeing that. Whether it is illness, disability, job loss, losing a partner or someone special in our lives and many other life events.

I am not saying that it is easy, I know from personal experience what it is like to be depressed after or during a life-changing event. But what I want to share is that in the end with a positive mindset, and being grateful in our everyday lives for the things we take for granted; it can be done.

I hope that reading this will encourage many people not to despair when diagnosed with AMD. There is much to hope for, and all is well. Just keep making those adjustments and enjoying life. It is possible.

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Support for AMD

My design Keep your eye.Support for Visual Impairment (AMD)

There are many people who when told that they have a problem with a vision impairment, are panicking and distressed.  Especially when they hear the words, “There is nothing we can do for you!” 

But those words are not true as far as getting on with your life with a vision impairment is concerned. I am talking here about AMD. (Age Related Macular Degeneration) ,

You may not be able to find a cure, but you can find plenty of help to make your life rich, full and abundant. I will tell you about some of what is available and have put up links to help you find out more below.

Personally, I have found help in abundance since being diagnosed with AMD.  I feel astonished at times when I see how much support there is out there. And most of it is Free.

Just as an aside here; note that I am still active even with a vision problem. Life does not come to a halt with AMD. I have met some amazing people who are active even with very poor sight. That is what support is all about.

I am currently attending, The Macular Society group meetings once a month and also a monthly lunch meeting with the new friends I have made in the group.

I have just completed four days, spread over four weeks, at the local Guild in Plymouth called Sensory Solutions. The course is called Improving Lives. I have found a niche in that guild now as a host to help out with the course.

I am going to attend the monthly meeting for graduates of the course at the Plymouth Library once a month, and am also hosting them. 

Hosting means that I will be making the drinks, serving food, helping people in and out of the taxis, preparing the rooms and generally supporting people with any concerns that they may have. I have made new friends by doing this too.

There was also an opportunity for my husband to come along to Sensory Solutions to learn more about the condition and meet other people who either live with visually impaired people or who support them in other ways. I have found that he understands more about what I experience because of that.

Sensory Solutions have also shown me how to use my settings on my lap top and also my iPad to make them easier to use.

Large Print.keyboard

Not many people are aware that their local eye hospital has a Liason Officer. These people are there to help you find your way through the maize of support and help available. They will also give you a low vision assessment. If the Consultant does not tell you that, just ask at reception.

On Facebook there are several groups, I belong to two. One in the USA and one in the UK. When I feel alarmed at something that I hear or something that is happening to my sight, I can just go into one of these groups and will very soon feel supported and get answers.

So, the moral of this story is; don’t panic, don’t be afraid, don’t be isolated.

I have found these groups to be upbeat, yet understanding, both the physical ones and the Social Media ones. I feel supported and useful. Life does go on even with a Vision Impairment, and just the other day I found myself saying that I actually get a kick out of it!

Here are the links.

The Macular Society.  You can google the society to find out more, but this link will put you through to the many groups all over the UK. https://www.macularsociety.org/groups

There is the well known RNIB (Royal National Institute for the Blind. You will be amazed at what is available. http://www.rnib.org.uk/benefits-and-support

For your local area in the UK go to http://www.visionaware.org/info/emotional-support/coping-with-vision-loss/peer-support-groups/125

On Facebook, the links I mentioned are; The UK Macular Degeneration Friendship Group.

https://www.facebook.com/groups/589067591220411/ 

And in the USA, which is run by two eye consultants.

https://www.facebook.com/groups/amdcommunity/

There are other groups for MD, one which I started myself, but I have let that one run down because I have found the ones above to be so helpful.

The reason why I haven’t gone into support for other visual problems is that I mainly write for those people who have AMD. But I am sure that if you look, you will find support for whatever condition you or your friend or loved one may have.

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